After several months of not being sure what was my injury was, the doctors finally figured it is a rare nerve damage injury called Complex Regional Pain Syndrome (RSD) and this is my "Rhodes to Recovery". Throughout my journey, I'll be publishing my recovery.
August 2009, I sustained an injury to my right foot and ankle and after several months of various doctor visits and physical therapy, they finally determined that I have a rare nerve damage injury called Complex Regional Pain Syndrome aka RSDS (Reflex Sympathetic Dystrophy Syndrome). RSDS is an injury disease. For more information on RSDS you can go to this website South Texas Innovative Medicine.
If left untreated the pain can spread throughout the entire body. It has already spread to my hip and is starting up the right side of my back. Dr. Rhodes at South Texas Innovative Medicine specializes in treating patients with this syndrome and has a 90% success rate. Treatments however must be done at the clinic in
Saturday, September 18, 2010
The NEW Vecttor Machine is Here!
My treatments are going ok, it's just really hard trying to get both treatments in before I pick up Hailee from school. Payton has been having a really hard time sleeping lately. After the kids are in bed, I start my night treatments. I've been so tired I usually fall asleep during my treatment and wake up when the machine beeps at me. I drag myself to my room - get undressed, brush my teeth and wash my face. Then crawl in bed and pass out. In Texas I was able to sleep all day long so my body could start to heal. Here at home, I'm trying to adjust my life accordingly and be a mom at the same time.
It's hard for someone who's never experienced this pain to understand. You see me and see my smiling but you don't see past the smile and see the retching pain on the inside and see how I'm physically and mentally exhausted. The only thing I want in the whole world is to be a good mom and wife. Yes, I'd love to be pain free again at some point you realize that you have this for life. I can be in remission, but the pain can always come back. I'm really grateful to have a few people in my life who truly know what I'm going through and can sympathize.
I predict the treatments to take a few months to start working. It's crazy how much my body can change in even 30 minutes. I'm really grateful for this new machine and how it can properly adjust to treat me the way my body needs it to. I'm still fighting with the insurance company because they won't pay for my treatments. I still owe family members about $3500 they let us borrow so i could go to Dr Rhodes. I find myself each day with so much on my plate to accomplish and I'm lucky if one of those things happens. I'll keep you updated soon.
Friday, April 23, 2010
70 mph Winds
I woke up this morning actually feeling pretty good. My right foot was hurting pretty badly and my left shoulder, but for the most part I was doing a little better today. The office was super excited for the cookies! I did my testing and they kept me on the same protocol and frequencies since they seem to be working. I just have to be super careful not to do anything stupid that is going to hurt myself. I love that I've made so many new friends here at the clinic. We see each other driving in/out and we wave to each other. There a genuine concern for each other and our well being.
I came home and had some pancakes, then hooked up to my machine. I had every intention of taking a nap but instead watched all my shows I missed last night on hulu. When I finally did fall asleep, after an hour or so, Doori called to ask me if I took her a package yesterday. I said yes. She had been asleep and the front desk guy knocked on her door and said there was a package for her. She was confused thinking that maybe somehow he sister had gotten her crackers and gatorade, she called to see if she had sent them, but nope. I guess when she went to Dr. Rhodes she asked if they sent them over to the hotel, they had no clue what she was talking about. Then she realized it must have been me. She just called to say thank you. I imagine it's hard for her to be here all by herself and now they want her to stay 9 extra days. I'm glad I followed my prompting to help her - I told her if she needs anything to please call me. Also that Trisha is a nurse in case she needs anything.
I've felt really lethargic this afternoon. I was sick to my stomach. I've not felt really hungry, but know I need to eat. I lied down and started to watch a movie and passed out for like 3 hours. Ate some dinner and came in here to talk to Hais and to read to her. My Grandma is out of the hospital and back home. I'm grateful we get to keep her a little longer. Hais just informed me she has no school Monday, so she'll have to stay with Mamo an extra day. I think they are going to go to the Glendale Public Library. She will be amazed, out library by our house is pretty tiny. Well... I'm going to go grab another brownie and hook up to my machine. I have my appointment at 9 AM and then in the afternoon we are going to the beach! Yeah I'm so excited! That has to be one of my favorite place on this earth. Good night!
Thursday, April 22, 2010
The Coast Guard Experience
I was able to Skype with both kids tonight. Oh I can't wait to see them next week and just hold them in my arms. I'll probably cry when I get home and not want to put them down. I sure miss Kel a lot too. I'm really grateful for him and how he's really stepped up to take care of Hais. Well 3 more minutes for my lower body treatment then 40 more for my upper. Then I should probably go to bed at a somewhat decent hour tonight because I need to get up early and take a shower. I was so sticky when I woke up this morning. Gross! Oh yeah and can we say it is super crazy windy here and even more windy at the beach. I'd hate to be here during a hurricane. Well hope you enjoyed my picture from today!
Tuesday, April 20, 2010
Soap Suds
He stopped by my room and I told him I wanted to talk with him. He sat down and I asked him more about RSD and told him to tell me medically why my pain keep jumping around so much. He said that the RSD goes through the blood meaning our blood goes through our entire body and where I'm experiencing the most pain is where my blood isn't circulating very well. He told me that I really need to make sure I'm eating A LOT of protein. He said to carry walnuts or almonds in my purse and to eat some every single hour. He said that RSD can make you hypoglycemic. He asked if I ever crave sugar and it's because of the RSD. I might eat something sugary and it might help for 10 minutes but then I'll crash. It's because my body is really craving the protein not the sugar. So this is my new venture... LOTS OF PROTEIN! I questioned about when the new machines will be in, he said they can't get here until the volcano in Iceland stops because it's seized all flights in Europe. I had no idea there was even a volcano. Being here I'm so out of the loop about what's going on in the world!

On the way home I stopped and filled up Trisha's car with gas, I knew they'd never take gas money from me, so I figured that was the best way since they could give it back. Then I stopped at Whataburger to pick us up some breakfast. It was so yummy!
Then I started my new protocols, they did help a little today. I had no migraine until 3 PM. I took a nap, then asked Trisha if she could pick me up some Excedrin. I called Kathy to tell her about what Dr. Rhodes had said and to see how Bill was doing. She said his surgery went great! He didn't snap the tendon, it was actually a blood clot in the wrist and he didn't sever the nerve either it was just bruised. It was the best case scenario! Trisha made chicken tacos for dinner, they were really good. I made some cookies to take to the office tomorrow. I love cookies, I could eat them all day, but then I'd gain a ton of weight. I went and took a shower and then talked to Hais and read to her. Kel got on and talked to me too. Hailee tattled and told me how Daddy made bubbles come out of the dish washer. Kel said well there was a pre-wash thing in the dish washer so I put some dish soap in there. It wasn't a lot of soap suds I only used 2 towels to clean it up. Oh goodness! I asked if he missed me. He said yeah I'm excited for you to take back over your wifely duties. I thought me being gone would make him appreciate me more, but to him he thinks it's easy. I tried to explain that I take care of kids all day plus everything else and I'm in horrible pain. He'll never understand unfortunately. I just pray I'm better when I get back. I got to talk to Payton for a few minutes. Kel had told me that every time Payton sees he asks if I'm on the plane. I can't wait, one more week and I can see my family. I miss them. I miss their faces and the funny things they say to me. Well, better go to bed. Have a good night!
Sunday, April 18, 2010
Please, please make it stop!
As soon as I was finished I hurried and drove 35 mph to church. This whole city has super low speed limits! I got there as they were singing the sacrament song. Trisha and Jeff were actually asked to speak in church this morning. They gave great talks. I missed Sunday school, I was sitting in the foyer talking to a sister that has firbomyalgia. I told Dora about Dr. Rhodes... we talked a lot about how people with these pain condition - how we rely on our faith so much to get us through our worst times. Before I went into Relief Society I saw Lynette and Anthony in the hallway, so I went over and said hi. They were the couple that came over Friday night. I'm so impressed by them, just meeting them and talking with them you can tell that they are genuinely good people. She invited me to they babies memorial service tonight.
I loved how strongly I felt the spirit in Relief Society. This ward is really amazing, they joke a lot but I love how first thing - turn to your neighbors and give them hugs. And before class started so many came up to greet me and see how I was doing. Bishop's wife was sitting behind me, they invited us over for dinner tonight. The lesson was about the Holy Ghost and how we feel it in our lives. At one point I felt impressed to add to the lesson that the more we act upon those promptings we receive the easier it will be for us to receive more promptings and to know and feel them. When class was over, the sister next to me came over and asked if I had everything I needed. I told her how wonderful Trisha and Jeff have been to me and I was doing ok. Another sister had come over too and they said well there are a lot of us that do nothing all day and would love to help if needed. This ward has really gone above and beyond in helping me. I also told a few of the sisters about Kathy and how hopefully she'd be coming soon. They are so excited and willing to help her to. I'm so grateful to be a member of a church that has the faith that we do, but most importantly where the people have such big hearts and follow their promptings to help those in need. I know especially after this experience i will never again deny a prompting I feel to help someone. I loved the song we sang... I'll go where you want me to go. I love the words.
After church I came home and called Kel and Paytie. They were actually at Bass Pro Shop instead of church. Kel said I just want to spend boy time with my son since I won't see him for a week. Payton was telling me all about the little fish! He was so excited! I started my new protocol. I started watching New Moon, but then had to pause it because I was so tired. I actually fell asleep. When my machine told me I was finished I unhooked all my electrodes and rolled over and went back to sleep. At some point I need to get on a normal sleep schedule again. When I awakened, I had to hurry because we were supposed to be at the Volcansek's house for dinner. We got there and instantly I felt so comfortable. They are truly good people. I helped broil the bread and we talked for a few minutes before dinner. Bishop is in the Air Force and a fighter pilot. And she owns a vinyl graphic business. They had this amazing family tree, I'd love to get one for Dana and I think I'm going to do that while I'm still here. Oh she'd love that! There was another couple at dinner tonight who were baptized a few months ago. They were such kind people, I love how I could see that sparkle in their eyes. You know I really am so grateful for this adventure I get to be a part of, I have learned so much while I've been here, it's incredible.
We got to the church for William's memorial. Wow... the spirit was so strong. There were a lot of people who attended. First the bishop spoke then Lynette. She's amazing. In December she went on bed rest and shortly there after went on bed rest in the hospital. She was only 21 weeks. William was born on Feb 2 weighing only 10 oz. He was so tiny. The Dr's didn't give him much chance of surviving, but he live for 9 weeks. And got to touch the lives of those around him for 9 weeks. Then they showed a video with pictures of him, there wasn't a dry face. The love the Vance's had for their son was incredible. Anthony then gave a closing talk. He talked about the bond between a son and his mother. How true that is, when you can hold them and feel them. I hope she remembers that feeling forever of holding little Will in her arms against her chest. Afterwards, I gave Lynette a hug and just thanked her for allowing me to be a part of their lives. They are so strong and so faithful. They both inspire me so much.
When we came home I was able to hook up to my machine and start working on Trisha's wedding album. It's done, she just has to journal all her stories. I'm so happy I could do that for them. Kathy called and we talked for quite a while. Bill is having surgery tomorrow, please pray for him. He's the closet thing I have to a dad. I'm really grateful for him, I want to have a dad so badly, I really miss mine. I'm just glad to know that I can always turn to Bill when I need him and he will always be there for me. Kathy told me while I'm at Dr. Rhodes to really tell them all my pain issues and stop putting on my happy face. While I'm there tomorrow, I think we are going to have a sit down to see if we can manage my pain better.
As I sat down at the computer tonight, the pain in my legs got really bad. I was in tears, I fervently started to pray begging please, please make it stop. Please just make in bearable. I've always been able to handle a lot of pain and know the Lord won't give us more than we can handle, but I think I'm pretty close to my limit. Shortly after I finished praying, the pain slowly started to decrease to a level i can at least handle and doesn't have me bend over in tears. for that I'm most grateful. I almost closed out of facebook, but decided to just open a new window instead to blog. I'm so glad I did. I have a friend who's son will have passed away a year ago on the 30th. I'm not a preachy type, I have my faith but don't share it very often. He's so kind to always ask how I'm feeling, then I asked how he was doing. He's really having a hard time right now with the anniversary so close. I kept feeling prompted on what to say to him to try to help and comfort him and let him know what I believe. I felt so strongly to share with him the faith i have and how and pray that he will be able to find the same peace in his heart that I have felt after losing my family members. Finally, I felt that I needed to ask him if he'd like to learn more from the missionaries and he wanted to, I know that when we pray our prayers are answered. Maybe not the way we expected but people come into our lives when we need them the most. I hope that when he does speak with the missionaries that he will have an open heart and mind to what they will teach him about families and how we can be together forever and the after life. I believe this with my whole heart and know it to be true. I wouldn't be where I am today had it not been for my faith. It's late, i better go to bed. Another early morning tomorrow.
Saturday, April 17, 2010
Will it Ever End?
At home I actually didn't take a nap, at one point I was really tired but fought it off. Mom called and said Grandma wasn't doing well, she was in ICU. She can't died while I'm here, I can't leave my treatments early or I won't get better. I think I have the best sister ever. Dana called to see how I was doing with my treatments and with the Grandma situation. I told her my frustrations, I could drive to Utah if grandma dies but then there's a possibility of re injuring myself from driving for so long. Remembering she just spend a grand on my kids and I to fly us to Disneyworld for a week with them. She told me she'd fly me to Utah too if needed. I'm really grateful to have her in my life and that family is so important to her. I hope she realizes how important she is to me. With me having to pay $8000 to get treatments here in Texas, I'm pretty broke right now. She doesn't even question it, they are just willing to help us.
I watched a movie while doing my laundry, I need to iron but that can wait for another day. Mom called Grandma is doing better - she's out of the ICU and into a regular room. If you are reading this keep her in your prayers. I can't lose someone else right now, not right now. Trisha made stir fry for dinner. It was really good. Then a spent time copying recipes into a notebook. I'm going to try really hard to actually start cooking a lot more. I know Kel would appreciate it! While I was going through recipes, of course it started raining again. Will it ever end?
Then I took a shower. I don't know if it was from running out of hot water and the cold touched my skin or just from getting out of the shower, the worst pain I've felt in a long time was shooting up the back of my thighs. I immediately got really sick to my stomach and was in tears. Then my ankle got really stiff. I got dressed and came in to hook up to my machine. The pain in still there but not as intense as it was a few hours ago. Hopefully when I fall asleep, I'll be tired enough my body will allow me to sleep through the entire night. It's going to be an early morning tomorrow, Dr. appt at 8 AM (that's 6 AM in Phoenix!) then I have to hurry to get to church by 9AM.
I started uploading Trisha and Jeff's wedding photos to Heritage Makers, I'm going to make them a wedding album to thank them for their hospitality.
I didn't really get to talk to my kids at all today which makes me kinda sad. I talked to Paytie for a minute but he was in the shower. Hailee had been at a party all day. I guess at one point she asked the babysitter if her fake tree was real or fake. Chris said fake. Hailee said Oh good! Then the chipmunks in my head won't try to climb it then. She's so silly and has such an imagination.
I better go to sleep I have to be up in 6 hours. Good night!
Saturday, March 13, 2010
Silent Auction Event Details

Monday, February 22, 2010
I feel so grateful and so humbled
So today while Payton was taking a nap, I decided to sit down and actually update this blog. I also did a few posting on Facebook asking my friends and family for help. Help to donate items or services. Anything that can help me in having a successful auction to raise the money I need to get to Texas. I did call Dr. Rhodes office again this morning and they did confirm that my insurance will not cover any of my expenses because Dr. Rhodes is out of network. I kept me head up and just kept calling around for people to help. As the day progressed I found myself on my knees over and over again thanking my Heavenly Father for sending people into my life and for their love and support. I have had so many people contact me today offering items and asking how they can help me. Some people I haven't seen since high school. Another a person that doesn't know me except for being a sister in Sorority Life on Facebook. My heart is just truly humbled. It makes me realize that I need to be more of a person like that, a person that will help a complete stranger because that is what Jesus would do and so many times I have turned down the opportunity to help others. I have honestly learned such a great lesson today and am truly humbled by the love and support from those around me.
Also, this morning I tried to contact a bishop for our church that is located in Corpus Christi to see if there would be a family that would allow me to stay in a spare room or would rent me a room for 17 days while I'm in Texas. I was googling all different things. Finally I found a church building 1.45 miles from Dr. Rhodes office. I actually called the mission office and asked if they knew what wards met there. They sent me to http://www.mormon.org to locate a meeting house. from there I was able to see the different wards and able to contact a bishop. As I called the Bishop today, I caught him just before he was leaving for work. I was so grateful for him and his willingness to help and ask a few members he had in mind. He just assured me that the Lord does work miracles and knew that everything would work out and my children would be ok while I'm gone. I've really worried about leaving Hailee and Payton, but know it what I need to do so I can get rest everyday so my body can heal properly from the treatments. I'm so grateful for my mom and the members of my ward who have offered to help take care of them and take Hailee to school everyday while I'm gone. I'm just so grateful.
Auction Date Change
Friday, January 29, 2010
Cash Donations
Undertermined Injury

On August 1, 2009, we were having our concrete poured in the backyard so our children would have a place to play. We decided to go to the store to look for some backyard items. Kelvin and I were having a conversation while walking and next thing I knew Hailee and I were on the ground. We had slipped in water, I remember my big toe went to one side of my flip flop and the rest of my ankle rolled. I caught myself with my right hand. Unfortunately for Hailee she landed straight on her forehead resulting in an immediate goose egg that was huge! I picked her up and carried her to a bench. After the ordeal and we got home we decided we should go to the hospital to be checked out. My ankle was super swollen and green and I could barely walk. Hailee kept complaining her head was hurting.

A few days later I was sitting in my BNI meeting and was in excruciating pain. So when Kelvin got home from work I went to Urgent Care and they did more x-rays and determined I had severely sprained my ankle. They wrapped it and told me to stay off it.
A few weeks later the pain was still horrible so I went to a Podiatrist who said the reason I couldn't even spread my toes apart was because I didn't want it to hurt. But in reality I was trying the toes weren't moving. He put my in a walking cast for 2 months because they thought I had hairline fractures in my ankle. He finally sent me to get MRI's of my foot and ankle and also to physical therapy. The therapy definitely helped to strengthen the ankle, but they had me in tears almost everyday. My second day of therapy was probably the worst pain I have ever felt in my entire life. They were trying to have me pick marbles up with my toes. I got 6 marbles and I was sobbing. After the rest of the exercises, they had me lay on the table to ice my ankle. It hurt when they put the ice on, but the longer it sat there the pain increased and was completely unbearable. Finally my trainer came over because he saw I just had tears streaming down my face and he immediately took off the ice. He tried to do an ultrasound on it and the pain was just as bad.
Finally the podiatrist said he had no clue what was wrong so he send me to an orthopedic surgeon. They finally determined I have Complex Regional Pain Syndrome. All he told me was that I had a rare nerve damage injury. He sent me to a neurologist to test the nerves in my foot and leg. Since that visit the pain has now spread to my hip. A good friend of mine suffers from RSD and went to a Dr in Texas who specialized in her disability. He invented a machine that when used at a protocol they set for you can eliminate all the pain. Come to find out Complex Region Pain Syndrome is the new name for RSD. What a miracle that she has one of these machines. On days where it's unbearable I go to her house and use her machine, the thing is I need to have the ability to use this machine twice a day. The adventure now is to raise enough money to see Dr. Rhodes since our insurance changed and now won't pay for my treatments.