August 2009, I sustained an injury to my right foot and ankle and after several months of various doctor visits and physical therapy, they finally determined that I have a rare nerve damage injury called Complex Regional Pain Syndrome aka RSDS (Reflex Sympathetic Dystrophy Syndrome). RSDS is an injury disease. For more information on RSDS you can go to this website South Texas Innovative Medicine.

If left untreated the pain can spread throughout the entire body. It has already spread to my hip and is starting up the right side of my back. Dr. Rhodes at South Texas Innovative Medicine specializes in treating patients with this syndrome and has a 90% success rate. Treatments however must be done at the clinic in Corpus Christi, TX for 15 consecutive days and is extremely expensive. I needed to raise between $8,000 - $10,000 for the treatments, housing, food, airfare, and transportation while in Texas.

Friday, January 29, 2010

Undertermined Injury


On August 1, 2009, we were having our concrete poured in the backyard so our children would have a place to play. We decided to go to the store to look for some backyard items. Kelvin and I were having a conversation while walking and next thing I knew Hailee and I were on the ground. We had slipped in water, I remember my big toe went to one side of my flip flop and the rest of my ankle rolled. I caught myself with my right hand. Unfortunately for Hailee she landed straight on her forehead resulting in an immediate goose egg that was huge! I picked her up and carried her to a bench. After the ordeal and we got home we decided we should go to the hospital to be checked out. My ankle was super swollen and green and I could barely walk. Hailee kept complaining her head was hurting. They x-rayed the entire right side of my body looking for any breaks. I was hurting all over. They determined I had contusions to pretty much the right side of my body.
A few days later I was sitting in my BNI meeting and was in excruciating pain. So when Kelvin got home from work I went to Urgent Care and they did more x-rays and determined I had severely sprained my ankle. They wrapped it and told me to stay off it.
A few weeks later the pain was still horrible so I went to a Podiatrist who said the reason I couldn't even spread my toes apart was because I didn't want it to hurt. But in reality I was trying the toes weren't moving. He put my in a walking cast for 2 months because they thought I had hairline fractures in my ankle. He finally sent me to get MRI's of my foot and ankle and also to physical therapy. The therapy definitely helped to strengthen the ankle, but they had me in tears almost everyday. My second day of therapy was probably the worst pain I have ever felt in my entire life. They were trying to have me pick marbles up with my toes. I got 6 marbles and I was sobbing. After the rest of the exercises, they had me lay on the table to ice my ankle. It hurt when they put the ice on, but the longer it sat there the pain increased and was completely unbearable. Finally my trainer came over because he saw I just had tears streaming down my face and he immediately took off the ice. He tried to do an ultrasound on it and the pain was just as bad.
Finally the podiatrist said he had no clue what was wrong so he send me to an orthopedic surgeon. They finally determined I have Complex Regional Pain Syndrome. All he told me was that I had a rare nerve damage injury. He sent me to a neurologist to test the nerves in my foot and leg. Since that visit the pain has now spread to my hip. A good friend of mine suffers from RSD and went to a Dr in Texas who specialized in her disability. He invented a machine that when used at a protocol they set for you can eliminate all the pain. Come to find out Complex Region Pain Syndrome is the new name for RSD. What a miracle that she has one of these machines. On days where it's unbearable I go to her house and use her machine, the thing is I need to have the ability to use this machine twice a day. The adventure now is to raise enough money to see Dr. Rhodes since our insurance changed and now won't pay for my treatments.

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